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Knowing

Knowledge in the chaos Vortex
Rippling through like waves
Turning up the power brings
reverberating rage

Stepping back, the echoes fade
As knowledge builds my power
Whisperings of the doings past
Returning hour by hour

Whither from, the echo calls
And whence will it return?
'Cross the lonely path of which
Is leading us astern. 

Walking back and running forward
an agent of the chaos
Looking for an aiding ally
We're bearing up our cross.

So, what is it that we know now
And whither shall it lead us?
Can we find another way
Before the demons bleed us?

Leggy

Spidey a liddle a Noid. Not leggy today.  But di sky is blue and di sun is shining. Tigre's been visiting friends. Spidey be leggy soon. De'll nebber catch me! 

Berry nice arachnid...

Ebbybody gloves Molly...
Ebben when she is Folly...
And taking pills can be stupid,
Especially when less then totally lucid.

They had the war on drugs...
And the war on hugs...
But where's the war on pills?
I've surely had my fill.

When I think of going crawling...
I find the hospitals appalling...
There's a lack of fruits
Bodies comin outta chutes.

Then they want a quick fix
But it's too late for it.

Medicalization



    I remember some of the better times before I started breaking into mental hospitals. Before my families and I started fighting over the pills. Yeah, I grew up in the medical system. At 10, I got my ADHD and dysgraphia. by 13, I had my major depression. By 17, I'd acquired my Bipolar. My first Coma. By 19, I had my second. By 20, I had my Autism Spectrum. By 38, I had my PTSD. At 40 or 41, I got my DID. I took stops by OCD like behavior, GAD, those didn't stick. Sleep apnea. Medicalization. 

    But before all that... before 16... before the pills started... we was like family. We cared. I used to hug the nurses. They made me stop. Funny how when the Clozaril stopped I started hugging healthcare workers again. Things had changed. We were all older. Many people had moved on. The rest of us were becoming bitter. Nothing happens in a vacuum. How did we get here?

    Personally, I think it had a lot to do with how dedicated my family was to healthcare. Growing up in hospitals is like growing up in prison. You learn everything. Maybe not at an expert level. What I learned was some things are dangerous. Gabapentin. Minipress. Benzos. Clozapine. Toxic CBT. Toxic masculinity. Lack of boundaries. Lying. Dissociation. Pills are dangerous. Very dangerous. ECT is not worth it. rTMS is safer. 

Friends of Upstate Healthcare


    I started a new group on Facebook. Maybe calm some waters. Hopefully that and tutor/tax. Depending on my health. Maybe Arson will come to an event. 
    Energy is low, but I feel good about this idea. Stay in home. Advocate. See new people.

Sleep

It doesn't look like I'll be going back to Vinewell. They took it off the list. Just as well. I named them as at fault for not checking my vitals. For the hospital visit. But I'm only sleeping a few hours a night. Well, minimum is about 5. Sometimes as much as 7 or even 8. But that's much different from sleeping 9-11 a night. I'd say my sleep has decreased by 40-50%. Maybe that's why she said I was in a deep sleep with Clozastill. 

Whistling...


    
Ok. I think the meds are balancing out. I've got more to do list items. I don't know how much public health is benefitting. But for me, it's a journey to being more well-rounded and functional. Still have the episodes. PTSD like. But i want to add more. Ive been trying, believe it or not, to protect privacy. But there's only so many metaphors. I know my families fairly well. I knew MA medical well. I have more work to do. But it's getting there. Gotta go by goodwill. More around the house. I called the internist about the physical symptoms and then the dystonia started, and I forgot. Now it's just some red bumps like shingles or chicken pox. But they stopped itching when dystonia went away.

    I gotta exercise more and get some sunlight. I've been doing the job search. Small was pretty. I just didn't recognize her. They hid Kenzie in IMU and Red was gone too. Shame. Paytlyn refused to work with me. I think time alone can be good. I miss my women... I remember when I was younger, I used to hug the nurses... that got me in trouble. But I learned a lot too. I like the nurses because they have a different perspective.

Lessons

    I think the greatest lesson MIP has had for me in recent times revolves around not repeating past mistakes. Moving on to new things, new people, new ways of thinking. Not repeating the past. Breaking habits. I think people can change. I'm trying to make sure I preserve the good while working out the bad. But it's been confusing. 

    So, I hope that I'm not the only one learning. I hope other people see what truly happened in my life and learn something from it. Whatever they may learn. I want them to learn something. I don't want to be the only one learning. I don't want to be bubble boy. I just want to be. Without being miserable. Preferably. But alive is good too. It's just wierd how people move back and forth between "You're not taking us seriously enough" and "Don't be so serious. Relax." Relaxing can be hard to do. 

Past Reflections