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Sunday, June 15, 2025

Patriots and Philosophers

 A Fall Evening, 1996…


The winds of late September were here, and the night was falling fast. As the day retreated, the shadows crept in, and amongst them I felt as if I belonged, a mere shadow amongst shadows. But I was en route to a much different place, admittedly with great reluctance. They asked me here, and so I came, neither interested nor disinterested in the event in question but merely compliant, because other than the shadows and constructs of my mind, they were my only true friends.

And yet, from over a mile away, the roar could be heard, and I braced myself for the sensory assault that was R.S. Vann football. This was no small event, but something that was taken very seriously by nearly all of the Vann parents and students. As we made our way into the crowded parking lot, the glare of the powerful halogen floodlights was an unstoppable force, cutting through the night and granting the event the brightness of day. But my sight was not the only of my senses to be overwhelmed, for the band was playing vigorously and the crowd cheering; the scent of freshly cut grass and the swell of humanity abounded; the press of the crowds around me nearly constant. Only my sensation of taste remained my own, for the time being at least, the rest I surrendered the moment I stepped out of the car.

They had invited me here as one of them, which was admittedly reassuring. It was a hybrid relationship in which I was almost a R.S. Vann student, but yet not. No one from Southside accompanied me. My denial instinct had been working overdrive, yet I was all too aware that I had not found a place at my high school as of yet but still floated on the edge of every social group I encountered there. Genie was the one exception, welcoming me and desirous of my attention, though I suspected it was more for my attentive listening then any true pleasure derived directly from my company.

There was something alive in me that I did not understand, but it made me different in an obvious way, and eventually I became so used to being different that I did not fight it, and that only made it more so. There was an entire list of qualities that made me unique, and though oftentimes uniqueness is a strength, it is not conducive to social inclusion. High school takes group membership to an even greater extreme, where conforming to the group is a necessary part of social success. Unfortunately for me, conformity was never a skill I was good at and one I have rebelled against all my life. So, I exacerbated my already poor social integration by refusing to conform. And to a great extent I was just being me, which I do not regret because I cannot change who I am and never wanted to. But nature had made me more different in more ways than most and if anything in childhood leads to social isolation, it is being different. Ignore and survive would become my motto, because fitting in seemed impossible, and instead of group membership I sought out individual friendships. But people tend to prefer to interact socially in groups, not individual relationships (outside of immediate family and romance). So, my strategy was ineffective at best. 

But it wasn’t the more superficial differences that concerned me. There was something larger at play that I did not understand. School was increasingly frustrating and overwhelming (which was mostly due to symptoms of ADD and an inability to cope with change that resembled mild autism spectrum), social relationships confusing and impossible. The world was a stressful assault, and I constantly retreated into my mind and in the real world sought out safe harbors, environments where my differentness was tolerated. But the world was only becoming more demanding, not less so. Gradually in addition to retreating into my mind I began to entertain darker thoughts as a release, thoughts that were disagreeable to me, inconsistent with who I was and as unpleasant to acknowledge as they were difficult to resist.

And yet a small part of me welcomed the change. It felt like these new thoughts were just another escape, a way to vent my low spirits. It seemed that as long as they remained just thoughts, there was no harm to them. But one thing I would learn the hard way is that when you allow those thoughts to flourish, they can, over time, leak out. And that can be, if you’ll allow my frankness, catastrophic.

But I was just a teenager trying to survive high school. What it came down to is that they were asking me to be someone I am not. Trying to fit in was an eternally futile endeavor but not one that I could avoid. And so my imagination flourished as I tried to ignore the world, but so too did the dark thoughts.

And yet here we were, a crowd cheering its guts out over the movement of a ball across a measure of grass. I’m not sure I could have been more out of place with my philosophical musing and standoffish behavior. They came, some with painted faces, most bearing “I love you Vann” shirts and wearing the light blue, white and red of their school mascot, the Patriot. The bright colors, the cheers and the jeers. It was a fantastic display of energy and one in which I could not in any way relate.

But I was glad for the old gang to be together again. They were in high spirits, speaking animatedly, at times jesting, then suddenly arguing, and soon laughing again. Only the core members (Matt, Aaron, Evan, and myself) were there. Yoshi had begun to connect with the popular crowd at Southside and as far as I knew he was with them somewhere. I could not account for the other absences, and those present apparently did not much feel these absences, for they neglected to acknowledge them.

I was told the Patriots were good, vastly superior to the Southside football team. I didn’t even know who they were playing and didn’t really care. Some team in red uniform faced the Vann Patriots in their light blue and white. I could not help but feel perplexed. I seem to be surrounded by an overflowing, almost bursting happiness, and I struggle to understand it. The crowd pulsed with enthusiasm and shouted cheers. Where does this joy come from? How do I let it in? I want to feel this flood of positive energy inside me. I want to smile and jump and scream and cheer. But as hard as I tried, it all seemed so trivial. All I had was silence and a shrug of my shoulders, nothing more. Because I wasn’t one of them. I was not one of them, so even though I stood as a member of the crowd, I was utterly alone.

I found myself picturing the scene as a metaphor. An epic battle between good and evil. In my mind’s eye I see heroic warriors charging at an enemy horde. They would triumph or be annihilated, their whole way of life, their very existence on the line. But this reality is nothing like that scenario. The stakes are trivial, and yet appearances would seem to refute that.

In the beginning I had no idea what would happen to us. For years we had been inseparable. They had always had my back and me theirs. Matt had understood me best and given me counsel, Evan and I had done everything together, from almost burning the house down to forging my report card to chasing girls. Aaron was steady, determined, always true to his word and never let me down. We had no politics and no cliques among us, a unique situation in teenage life. They knew how to let me be me and still be part of the group. My friends pretend they don’t notice, but I know they do. How could they not? My smile is mostly absent, and then it is there as an afterthought, vanishing as soon as it begins. When I try to force a smile, it looks robotic, almost comical. I burn with frustration at my intransigence. 

To me it mattered less which high school I went to and more the friends I had around me. I had no loyalty to either school. I just wanted to be with the gang, as always. It was less a bond of group membership but rather more like several bonds of individual friendship that were shared. Deep down I suspected I would never truly be a Southside Tiger. I didn’t belong in IB. I was too learning challenged, had too many problems. IB students were organized, determined, and capable. I was none of those things and trying to build a social life at that school from scratch seemed like more then I was capable of. Me, a person who could not deal with change even in small amounts, was overwhelmed by the challenge of adapting to Southside. R.S. Vann would not have been perfect, but I didn’t belong in IB. I had no clue of how to make my situation work, I was just doing the best I could in a bad situation, and that seemed to become a trend for me.

I could not help but speculate on my surroundings, bored as I was by the game itself and not always following the conversation, especially when (as it often did) it veered into Vann specific topics. I wondered if anyone found this event as peculiar as I. I would look about me for anyone who stood out the way I did, but they were few in number. The few of them that existed were not likely to be here.

I tried not to look at the girls at all. For inevitably acknowledging them led to two things that ran in parallel: adoring them and analyzing them, neither of which was helpful. Adoring them inevitably led to wanting them and someone of my limited social skills was not going to be successful in that endeavor, as foolish experience would prove time and again. And analyzing them was just another over-utilization of my intellectualizing everything.

I did not want to get caught up in those emotions. But they were all around me, and almost every one of them possessing traits that I could not help but adore. People would tell me that these girls didn’t understand, but someday they would. I only believed the first part. Others told me I didn’t need them, which was true and untrue at the same time. I didn’t need people to be me. I very much could be me all by myself. But even I could not survive alone forever, though circumstances would often force me to try.

As I wandered through my mental playground the game progressed, with both sides scoring, but by halftime the Patriots were settling into a comfortable lead, which left my friends in good spirits. The talk mostly revolved around their experiences at Vann, which give me even more excuse to space out during the conversation. Matt, as usual, avoiding expressing his inner thoughts, instead focusing on common topics such as the manner of the different instructors. Evan complained about the cliques, while Aaron spoke about the workload. One thing they all seemed enthusiastic about was the advertisement of tryouts for the academic team, which all expressed interest in joining. At least they were predictable. Matt would always deflect, Evan would always compare himself to others, and Aaron would always be focused on the task at hand.

And so they chatted about high school and the athletes played their ball game… while I wandered in my mental playground. Every now and then my eyes would chance to meet another’s, and I wondered what thoughts were moving through their mind and if they knew which ones were moving through mine. In my mind, conversations with various persons, some present, some absent, some who never existed at all but were merely collections and pieces of people I knew or merely wanted to know or tried desperately not to remember.

I could fall in love at the drop of a hat or pledge my life to a cause in an instant, but I could not bring myself to care about football or high school. Someday, I promised myself, I would.

My mind drifted as the crowd roared, and gradually I slipped farther. Scrambled, and surging without warning, thoughts suddenly here and suddenly gone, only to randomly resurface, and all the while a benevolent presence watching and whispering, her eyes the greenest emeralds, her smile the gentlest suggestion, her scarred soul, a record of both torment and triumph that she would never speak of but could not hide. She needed no name, but had one, she knew my fears but had none. She would see this through. I don’t know how I knew that.

Then the other, pacing in the background, stalking the world at large… She would never give an inch, never admit defeat, never back down. She was principles more than anything else, and when her eyes flashed you knew she had made her decision. To her, compromise was unthinkable, and justice was not only blind, but unfeeling.

They were constructs of my mind. I knew they weren’t real and never pretended otherwise. They were useful only in saying the things unsaid that mattered most. But I built them up as reflections of the greatest parts of me. Skye was all patience, compassion, but brave and steadfast. She understood me better than anyone. I never needed to explain myself to her. And if she could have been real there was nothing, I would have liked more then to meet her. Ashes was strong willed, decisive, impulsive, and never willing to compromise, especially when it came to her principles. They were feminine because I was not allowed to be feminine. Not that I wanted to be feminine, but the aspects of myself that society associated with women I gave to them because I felt compelled to only express my masculine traits. If I had been discouraged to be masculine, they would probably have been men. In short, they were concepts to represent parts of me, and I probably could have created countless numbers of these concepts to represent all the things I could not be. But I knew who I was and what I wanted. So, when the world was bringing me down, which was often, I simply retreated to my mental playground, where there was one no to tell you you were wrong or to treat you like you were different. And they, my constructs were always there to give me company.

Saturday, June 14, 2025

Munchousens by proxy

Dear Elle,

I've really had some doubts about my families. I was in the hospital by age 13. 13. Now I have DID. According to standardized testing. Which only occurs in situations of abuse before the age of ten. Then im thinking about all the drugs they put me on and the lack of independence. Then im looking at Münchhausens by proxy. And it says the person in charge of the care of the person with by proxy is often a health care provider. I have two doctors in my family. You do see where im going with this? If im right, that would make sense because I was told my parents are harmful to me. It's just, you know, I've tried to help them. They don't listen. I've got to think on this some more. I just hope there are eyes on me. In case anyone tries to threaten or pressure. It's hard to stay level like this.

Ashes

Lost n'rigged



A small town... a white building built like an inn... People would come in and line up in the room to the right with the others, thinking they were checking in to a hotel and not the hospital where James Taylor recovered from heroine addiction. Opposite that room, the one room with AC, where everyone would pile in on the 100 degree summer days, making the room itself hot. Past there, past the nurses station and the stairs going up, you could get to the back door opening on a lawn with chairs where we played whiffle ball. Or go downstairs to a cave like basement with a big screen and vending. 
Facing that main building, to the left was level 2, apartments. Somewhere, I think in lennox, was another building of apartments. 
I remember Marge and Susie. I remember the bank. Walking down the street, the bank was across from the recreation therapy building.

Trauma habits

Unusual experiences can instill unusual habits. I have a bed but I sleep on the couch. Im trying to get comfortable sleeping in my room. I have trouble organizing, and stuff ends up in odd places. When adrenaline rises, I dart and then almost collapse. I don't like to stand long for fear of fainting.  I have trouble prioritizing. Memories come suddenly. I dissociate (space out) frequently. My face tingles. Tinnitus. But overall, much improvement since march.

Anxiety

What is it?

    Anxiety is an emotion that tells us when something in our life seems out of place or improper. 

What does it tell us?

    Anxiety tells us to exercise caution, to think before acting.

How to deal with it?

    Visualizations are fantastic for anxiety. Deep breathing. Ice. talking to someone. Counting down from 100 by 7s. A good joke. Singing. Moving your body (dance). Yoga. running. 

Body sensations

    Tightness, faintness, blurred vision, sweating, butterflies, heart racing, restlessness, energy

Examples?

    Making a speech, driving in a busy area, telling someone bad news.

Bad Joke

What did one suspicious nail say to the other?

I've got MIST'RUST!

Four plus Four Equals

 EIGHT LEGS! *Sweeping* Ebbyday! Spidey knot di fastest arachnid in di attick, but sumting rotten round here... Spidey fix...

Dear Elle

Dear Elle,

    I'm drawing on the knowledge and the faith I have collected from so many people. You were there from 97-20. They can make it about your hair color or your physical attributes, but you were my RN. You watched over me, you taught me, you never failed me. You know me. 

    I need to be a better me. While I cannot simply sit and blame my families, I cannot stay the same nor can I simply forget. You may be asking why. Why he can't just go live life and work and get married and forget. To me, that kind of walking away is a betrayal of the struggle and an abandonment of the people like me who also got lost as well as a burying of the truth. I cannot be the only zombie that's been walking around drugged up. I cannot believe that living that way is healthy or right. Maybe I haven't seen enough evil, but life has not actually been a walk in the park. I don't like being that disabled guy with the name. 

    You WOULD NOT LET ME BREAK. So now I have to be more. To fail to do so would be to let the lies about myself and the people around me fester and to dishonor the work you did. God gives us purposes. In McClean I kept asking why. I could leave. I could go somewhere else. But it's been too long here. It's become unfinished business. What would I be if I let the people around me break? Maybe you didn't know how much I relied on you. Maybe there's people that rely on me too. 

    I have to trust. I have to try to lift others up. I won't always be able to. At times I will fail. My heart was never in the rat race. I wanted to touch people. I feel dull and worn. But so long as I am breathing, I will continue to try to understand how to make this right. I don't have it in me to shut my eyes and ears to focus on money and raising kids without first untangling the trail of pills and hospitals. There has to be something more. I hope, wherever you are, you understand. It seems so many other people want to bury this. Just give the psychotic guy more happy pills until he shuts up and does something useful. I hope they are wrong about me. There has to be something more than silence in my future.

Yours,

Ashes

Drug Education

I created a series called creative medicine to warn people about the dangers of different prescription drugs. This is not at all an encouragement to use them. Quite the opposite. I learned wrong. I still have to take some. I try to take as few as possible. Lots of vitamins helps to make up the difference. My hope is that by educating Greenville County, I can avoid lots of pills out there. I can avoid doctors getting script happy. 

Minipress (Prazosin)

I'll never forget Mini press. This is some highly dangerous stuff. The red pills. It decreases adrenaline. Makes you think things are ok. deactivates fight or flight. decreases nightmares for some people. BUT WHEN YOU COME DOWN... shit gets real. suddenly you're freaking out and can't stop. Nothing makes it stop. That's probably why they dye it red. it's an alpha-blocker. primarily for blood pressure. Beta blockers are safer, less powerful. The blue pills. Propranolol. 

Gabapentin

    Gabapentin is a drug that I have strong feelings about. That stuff can get pretty crazy. Disinhibits behavior like alcohol. I start doing all sorts of crazy stuff. This one is scary. Mostly used for seizures, but also for shingles and off label for anxiety. Long term use, especially at high doses, can (in my experience) lead to muscle spasms, phantom sensations, and a loss of awareness.

Benzodiazapines

    Benzos are classified as anti-anxiety medications, but they can be used for some other things like sleep, or I think as add ons for seizures or akathisia, for example. Some benzos are valium, tranxene, ativan, xanax, and klonopin. 
    These meds have become slightly less popular for a few different reasons. Firstly, they are addictive. Secondly, they decrease alertness. Thirdly, they have certain long-term effects, primarily in memory, attention, and overall cognitive functioning. These effects can be permanent, regardless of whether the drugs are stopped. Can you guess how many of those Benzos I have tried? of the ones listed above only, I have tried all but xanax. These things are dangerous. They change your perception. 
    The hippocampus encodes memories based on emotional intensity. When you're on a benzo, it calms you and everything is just groovy. Decreases the intensity. What will you remember? How well will you function on the drug, and once discontinued? It also slows down your learning. You adapt more slowly because it slows down the neural transmissions via the GABA system. Benzos truly are dangerous. 
    When they talk about substance abuse and addiction... I was on a lot of meds by prescription. My use of prescription meds was not safe. That's why I talk about the meds. It's important that I talk about the meds. How dangerous they are. It reminds me not to take them. I still keep ativan. But only for when I need to go near hospitals. I can't go near memorial without freaking out. I was never into opioids, thank God. But drugs like benzos, alpha blockers, gabapentin, mirapex, and perhaps amantadine... some of these drugs are quite dangerous. clozapine numbed me out, making me unaware of how I was affecting others and how my mind was adapting to the world. Without natural emotional response, I wasn't learning about the world.

Gender Differences in Healthcare



    I think some people are missing the point. I needed a different perspective from medically perfectionist liberalized medicine. I wasn't getting the perspective I needed. I needed someone to point out the insanity of what was going on. And I found those people. I found them in a black female doctor, a male PA, two female LPCs, and a female NP internist. 

    These people are giving me that different perspective. Maybe I could have found more white male practitioners who could give me that perspective. Maybe not. But what I know for sure is that this has to stop. I picked people that were not part of the club on purpose. The meds weren't working out. I was misled. They weren't helping me. Now I'm on different ones. I have to keep in the middle, wherever that path is exactly. The doctors will always try. They can't help themselves. They need something to fix. Like a bored auto mechanic. I need people to stop trying to fix me. It's really run amuck. I can't imagine what my healthcare has cost in total. I need to focus on de-medicalizing my mind, unlearning what I was taught. Medication is definitely dangerous. I'm not actually trying to antagonize people. But I was misled about medication. It's dangerous. I was misled about Bipolar. I was misled about CBT and how men can be healthy as men. 

Courage

    Courage isn't just facing pain or uncertainty. Courage does also involve knowing when to say no. And that would be easier, if I wasn't raised to be addicted to liberalized medicine. 

    Do I know what the perfect middle ground is? Most definitely not. I do not. But what I am certain of, looking at my history, is that I was misled about what medicine can do. My body is too tired. Medically complex has got to be the body's way of saying "I can't keep doing this. I've got to slow it down. It's wearing me out." I've not been realistic. Whatever is or isn't wrong with me, I can't do the hospitals. God willing, I'll do whatever I can do, and I'll die peacefully. God willing, the world will back off angry so angry can back off too. 

    What I truly need is no more medicalized perfection and some privacy. Because to me this is Munchhausen's by proxy or something close to it. It's stressing me out. I need privacy. Medical complex trauma. You diagnosed it. It needs to stop. I know the doctors will find me. 

    I've got to focus on maintaining boundaries, minding my own business... accounting in limited amounts, and writing. Hopefully, Public Health is paying attention. To keep the kids safe from overmedicalization. Because I don't actually want to hurt myself or others, and the doctors weren't helping me. They're wasting public funding with this nonsense. Miseducated and misled. It has to stop. I need privacy and peace and quiet. That's what I need. 

Shelter in Place

 

    These storms get crazy sometimes. Interesting that the hospital uses the website. So I thought maybe giving them more information would help. But then I realized that's not what I need. I need to learn to shelter in place better, and let the storms pass. I need to get to know people in the community, not in the hospital. Hospitals aren't places for meeting people. 

    I need to let people in the community learn about me. I need to learn about them. I need to adapt. Because I'm tired of being "just" that disabled guy. I need some privacy and some peace. This isn't working, the whole shipping me from here to there to everywhere and trying every last therapy and drug. I've got to stay on the outside, in the community, doing what I can and not pushing too hard. That's why I firewalled my healthcare. That's why I stopped going out. Because I can't keep up with this. 

    The hospitals were a mistake. Bipolar was a mistake. It hasn't actually helped me. What I need, instead of meds labeled bipolar that do not lead to long term benefit or education for bipolar which teaches me the wrong things, is to go at a speed I can maintain. To not let others push me to do more than I can maintain. And maybe they can at least learn from my life as a case study of what not to do. Do not take a doctor's child and go gonzo with hospital insurance, medicate out the wazzoo and ship from state to state. WASTE OF MONEY. 

    Rather, give the child something they can realistically accomplish. Don't push them too hard. Let them be themselves. You won't end up with permanent disability and some miserable and bitter people that way. Otherwise, it's symptom whack a mole and hospital lottery all day long. Just like I can criticize public policy and still care about and support the actual work of the soldiers that protect us, I can criticize health policy and still care about and support the actual work of the health care workers. Because I know for a fact that they have better things to do then run circles for some doctor who wants to be med happy and perfectionist on hospital insurance. And when that insurance is no longer good and it doesn't pay so well, that strategy backfires. 

    AM I STARTING TO MAKE ANY SENSE YET? I sure hope so. Because my body is wearing out. It's been pushed too hard. And I can't fix it. The body doesn't work that way. You make it hard to believe in medicine with these policies. I sure hope someone is listening. Because we can't let this happen to our kids. We've got to slow down the med trains. It's not worth it. Not in the long run. Too much chaos. Not cost effective. We need to be more realistic about what we expect from medicine. The more these doctors talk, the more I have to shut my ears. Whatever you think you know, think again. 

Past Reflections