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Shelter in Place

 

    These storms get crazy sometimes. Interesting that the hospital uses the website. So I thought maybe giving them more information would help. But then I realized that's not what I need. I need to learn to shelter in place better, and let the storms pass. I need to get to know people in the community, not in the hospital. Hospitals aren't places for meeting people. 

    I need to let people in the community learn about me. I need to learn about them. I need to adapt. Because I'm tired of being "just" that disabled guy. I need some privacy and some peace. This isn't working, the whole shipping me from here to there to everywhere and trying every last therapy and drug. I've got to stay on the outside, in the community, doing what I can and not pushing too hard. That's why I firewalled my healthcare. That's why I stopped going out. Because I can't keep up with this. 

    The hospitals were a mistake. Bipolar was a mistake. It hasn't actually helped me. What I need, instead of meds labeled bipolar that do not lead to long term benefit or education for bipolar which teaches me the wrong things, is to go at a speed I can maintain. To not let others push me to do more than I can maintain. And maybe they can at least learn from my life as a case study of what not to do. Do not take a doctor's child and go gonzo with hospital insurance, medicate out the wazzoo and ship from state to state. WASTE OF MONEY. 

    Rather, give the child something they can realistically accomplish. Don't push them too hard. Let them be themselves. You won't end up with permanent disability and some miserable and bitter people that way. Otherwise, it's symptom whack a mole and hospital lottery all day long. Just like I can criticize public policy and still care about and support the actual work of the soldiers that protect us, I can criticize health policy and still care about and support the actual work of the health care workers. Because I know for a fact that they have better things to do then run circles for some doctor who wants to be med happy and perfectionist on hospital insurance. And when that insurance is no longer good and it doesn't pay so well, that strategy backfires. 

    AM I STARTING TO MAKE ANY SENSE YET? I sure hope so. Because my body is wearing out. It's been pushed too hard. And I can't fix it. The body doesn't work that way. You make it hard to believe in medicine with these policies. I sure hope someone is listening. Because we can't let this happen to our kids. We've got to slow down the med trains. It's not worth it. Not in the long run. Too much chaos. Not cost effective. We need to be more realistic about what we expect from medicine. The more these doctors talk, the more I have to shut my ears. Whatever you think you know, think again. 

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