Dear Elle,

I'm sorry. That i scared you. You always kept me safe. I hope you understand. 

Love,

Sarah

Dating and Autism

     The other day, someone suggested to me that I should date someone with autism. I have to say the idea rather horrified me. The idea of putting together two people with poor social skills seems like a recipe for disaster. I said I'd rather date someone with ADHD. ADHD seems easier to handle. Autism can be rough. Better yet, I wish I could date someone in healthcare (not one of my professionals). They just seem to understand better, but they still have enough social skills that they can lead the way when I cannot. 

    I hope someday to find someone, but I don't plan to look for autistic people as dating partners. If I meet someone that is a good fit and has autism, then great. But I'm not about to go around looking for autism as if that's something on a checklist. I think people in a couple need to complement each other's strengths and weaknesses, not reinforce them. I'd hope to meet someone with better social skills or at least skills that complement my own, not reinforce my weaknesses. 

Intrusive Thoughts

    I do get intrusive thoughts. These can vary in nature. When I'm especially triggered, they can get strong. I think sometimes the doctors confused a triggered, dissociative state that includes intrusive thoughts and hallucinations with Bipolar mania that includes paranoia and psychosis. 

    I see people that I've met before. I see them and I talk to them. Sometimes they even say things back. It started when I was little. Most of them are from my families. Biological or medical. I talk to them when they aren't there.

     I did not want to be a doctor, but I did want more from my life. But they say some things are permanent. I just hope my angels are watching over me. I know I can't count on people in the community to understand. I have a goobledy gook bunch of DX's in my chart, impaired recall, attention problems, dysregulation, disconnections with reality, time distortions... I don't know what the future holds, but I know that the professionals are hard at work. I just know that the harder people push me, the harder I have to push the doctors, and they can make mistakes. I guess to some extent I'm still working on acceptance. 

The Serenity Prayer

God grant me the serenity

To accept the things I cannot change;

Courage to change the things I can;

And wisdom to know the difference.

Living one day at a time;

Enjoying one moment at a time;

Accepting hardships as the pathway to peace;

Taking, as He did, this sinful world

As it is, not as I would have it;

Trusting that He will make things right

If I surrender to His Will;

So that I may be reasonably happy in this life

And supremely happy with Him

Forever and ever in the next.

Amen.

Prayer of St. Francis

Lord, make me an instrument of your peace:

where there is hatred, let me sow love;

where there is injury, pardon;

where there is doubt, faith;

where there is despair, hope;

where there is darkness, light;

where there is sadness, joy.

O divine Master, grant that I may not so much seek

to be consoled as to console,

to be understood as to understand,

to be loved as to love.

For it is in giving that we receive,

it is in pardoning that we are pardoned,

and it is in dying that we are born to eternal life.

Weird Ideas Part V

 

   I don't like it when people get hurt. I don't. But she was all that was standing in the way of me and that key card. People wonder why I get frustrated and angry, it's when other people condescend or stand in my way or make threats. Even for decades after I started having thoughts of hurting health care workers, I didn't realize the anger problems I had. 

    She was a nice lady. I could have attacked her, no one was nearby but I didn't want her to be hurt. I'm not that kind of person. I knew I didn't want to do it so I didn't. She was safe with me. So maybe she wasn't so crazy to go walking along down a dim hall alone and far from the unit at night with a patient. Maybe some men would have attacked a woman half thier weight in an opportune moment in a dark hall. But I'm just not one of them. I just struggle to communicate and get angry.

   I'm hoping that my feedback filters in little by little to the upstate healthcare community. I think it's important to understand the dangers of Bad Psychiatry and Medicalized Perfectionism. Not every little imperfection of a living organism can be corrected. Sometimes we simply are imperfect beings. Imperfect beings that will never be perfect. 

    We are imperfect beings that get overdiagnosed, overanalyzed, over criticized for our imperfections and this leads to things like thoughts of harm to self or others, agitation, PTSD, and broken trust. Forced medication is not ok. Goading is not ok. Threats are not ok. Lying and playing games is not ok. Slapping on a new dx and new drugs and blaming the patient is not helpful. Remember the Hippocratic oath, because, contrary to popular belief, I can and will always find a more ethical provider somewhere else and word does spread. Even if I don't file a complaint, it spreads. 

    And you can blame yourselves for that. 

Gender Conformity and Ableism

 

   I think two forces that have had major destructive impacts on my life are Gender Conformity and Ableism. Ableism is a big part of mental health stigma, but they are not the same. 

    Ableism is the belief that people who are nuerotypical (don't have things like autism, Down's Syndrome, retardation, mental illness, etc) and physically normal (not in wheelchairs, etc), are superior to those who are different. This goes back to Asperger, Nazism, and medicalized perfection. See the Nazis wanted perfect people too, all blue and blonde haired and strong and perfect. Only America takes it in a different direction. Instead of overtly trying to genetically perfect the population, we use other means. We stigmatize people who are different ("We're going to have to ship him out of state", jail threats, put downs, denial of accommodations) we use means to "thin out the herd". 

    We're not that much different from Nazis in some ways. The Nazis performed human experimentation to try to find ways to perfect humans. They gave amphetamines to soldiers, performed unethical medical experiments on Jews, they had a vision. I try to tolerate people who are different and find things to appreciate in them. Because I know what it's like to be medically perfected and examined from every angle to find faults. 

    Gender conformity is slightly different in that it's about the idea that men and women have distinctly different roles in society due to their biological differences. Some common ideas are that women should not work and that men are supposed to be strong and silent and all about their careers. It's very black and white thinking applied to genetic differences. Like Ableism, it fails to take into the account that humans are imperfect living organisms that do not conform to schematics. We were not designed, we were formed or created as imperfect beings to live in harmony, not to destroy one another. 

Post ER Visit

    It feels good to be getting Pristiq back in my system. I was really relieved by the difference in the ER staff yesterday. They were much more receptive. 

    I think I need to reduce my mychart messages more. I get frustrated with the doctors and some of the staff. I'm trying to increase my trust and improve my regulation. I may have called the doctors something like jealous incompetent idiots or something like that and I believe I told them that some people should rot in hell. Maybe a bit abrasive. Maybe I'm oversensitive. I'm trying to take this in a more positive direction. Because I believe that rather than fantasizing about guns and explosives that I should focus on trying to treat them the way I want to be treated. So that's what I tried to do. I was actually there for about 4-5 hours, not 2. I lose track of time. 

    So now I just need the rest of the pristiq. And to stay positive. Be me. The best me I can be.