All I really need is a quiet life making my own choices. That's it. That's really what I have. I have problems, but I make them work.
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Tuesday, September 23, 2025
In a way I feel like my life started 3 years ago when I got off clozaril and the magic maker quit. Unfortunately, I do get to have an opinion and make decisions. A Lotta people dont like that. Take that one fella in the ER, a male nurse. It was a beautiful moment we shared. He took the time to snarl at me how much of a disappointment I was to my father. So sweet. That was shortly after he violently shoved a catheter up my urethra. Some of these of these moments were Kodak.
Anyways, the world is so different off clozaril. I read people better, and I think more coherently. So long as I follow the law, I get to make choices, like which provider and what medication. I'm becoming more and more aware of the disconnect. They miss bipolar and clozastill. They dont like the dx. They dont like the provider. It's unfortunate.
Anyways. It makes more sense now. Everything, really. I just dont like people messing with my health care and other people dont believe in my provider. As long as I focus on the most pressing and real tasks, no one has reason to fool with me. I like stability. It works for me.
Reminders
I'm taking the time to remind family members and healthcare providers of my legal rights. While I'm still a living, breathing, US citizen I still have some of those rights. Sometimes people come up with excuses to violate my rights repeatedly.
There are several laws that apply to healthcare. I went to the Patient Bill of Rights.
- Timely access to medical care.
- Be treated with dignity and respect by each MED health unit staff member.
- Medical care that is free from discrimination on the basis of age, sex, race, ethnicity, national origin, language, disease, disability, or religion.
- Easy-to-understand information about your diagnosis and treatment options from your MED medical service provider.
- Ask your MED medical service provider questions so that you can make informed decisions about your health.
- Request the professional qualifications of the primary MED medical service provider rendering care.
- Communicate confidentially with your MED medical service provider.
- Privacy and confidentiality as outlined in the Notice of Privacy Practices (available at your health unit).
- Withdraw your consent, delay, or otherwise refuse examination, intervention, or treatment.
- Continuity of care – if for any reason you decide to seek care elsewhere, your MED medical service provider will work to coordinate your care in accordance with your wishes.
- Review and request amendments to your medical records.
- Provide confidential feedback about any matter that occurs in MED Health Units by available means
Walls
I'm not sure if I don't say what I need to say or people simply don't listen. I'm trying to be more deliberate with my communication. People that don't listen, I don't spend time with. I now have a job that requires minimal talking so I dont have to stress my voice for no result (VNS implant). I'm saving my communication for when it has impact. For the most important things. Without the medication, I communicate mostly by the mychart (text) messages, which is something Prichards was completely unwilling to do. It's so much easier. Plus, it creates a paper trail, so no one can bullshit or do the run around. I talk to five people on a regular basis. Well six now. The PA, two counseling people, my sister, and 2 friends. Cutting down on social contacts keeps my head clearer. Maybe I'm hypersensitive, but I'm finding people much more difficult. I'm trying to be much more careful. Psychological walls, gates, checkpoints. It's not only harder to focus since clozaril dc, but I seem hypersensitive. I almost always have tinnitus. I suspect I come across as aloof. I need to protect myself. While people can argue whether I've had a hard time, I can plainly say that it's difficult to tolerate stress. So while people can argue all day long about who I am and what I am capable of, I can clearly demonstrate how extreme my limits can be. I just don't have the endurance, particularly when people work at cross purposes.
Running people over destroys trust. People can call me paranoid if they like, but I dont have the patience or the energy for playing games. I need to focus on what's real. If I say something once and it is ignored, denied, or not heard, thats it. One strike and you're out. Communication should not be a war. People don't listen, they're gone. I'm done.
There are many people that I have not had real conversations with in months. I just dont see the point anymore. If its not working, it's not working. I'm scratching people off the list. One day I'll be dead. I'm not there yet. But, while I'm still alive, I'm not going to keep grinding the same stones. There's text, email, voicemail. If you don't hear back, no hard feelings on this end, just know that it's not working. I'm done. I know people have no fucking clue, but its been 3 years since Prichards quit. My life changed. It will never be the same. Getting off clozaril, switching psychs twice, and all these hospital visits has been a nightmare. I do not have the energy to fool with people anymore. I'm done. You can blame me, my counselor, spravato, thc, you can blame the damn moon and then you can fuck off. Kindly please. Too many people in my pathetic little life fucking around. Call me paranoid, then kindly fuck off. I need breathing room.
Anyone that has the fool idea to screw with my providers, my healthcare, or my well-being, keep in mind that I'm always more then happy to contact the state and file a complaint. While I'm still living, I do get to make some choices. I've tried to be nice. I prefer to be nice. Now, I reserve the right to do I need to do to protect myself.
If people finally fuck off for a good long while, then maybe things will change. But people are simply not taking a hint. Then they act surprised when relationships crumble, trust crumbles. If you can't listen to me, you can shout at the wind or listen to me through legal channels. I can be ugly too. I don't like it, but I'm learning to live with it.
If you think I'm winning, you haven't checked the score.
Healthcare Chess
Pruning
Responsibility
There are times in life that a person needs to walk away. Sometimes you can explain, sometimes you simply have to move away as quickly as you possibly can while you still can. Further, sometimes life involves a lot of one way communication. That's not generally a good thing, but it happens. Usually, one way communication is a good sign that it's time to suspend communication or end it permanently. Sometimes you don't get a chance to say goodbye, much less to explain.
I've put all my communications on hold pretty much since march. Damage control mode. I don't know if or when some communications will resume. I'm focusing on what's real. Writing. Working. Maintaining my health. Maintaining space. Slowing down the bullshit train.
I'm hoping that eventually some communications resume. Others, I'd rather let go.
There are many things I can take responsibility for. I can take responsibility for being funny, intelligent, kind, good at writing, contemplative, sometimes overthinking, creative, generally quiet, a bit edgy, somewhat tired, frustrated, cautious, repeatedly stabbed in the back, belittled, threatened, harassed, at times not sure if the world is falling apart, sometimes on the edge of leaving town, always thinking of contingencies, having taken THC to cope with all the bullshit and not getting what I needed in the first place, Given the incorrect medication, not given the right meds, over-diagnosed, misdiagnosed, lied about, had my reputation repeatedly and completely trashed, Having taken a lot of different medications (some by choice, others not), Gotten extremely pissed off at hospitals that just go completely apeshit (usually because someone stabs me in the back)...
I can take responsibility for so many things. I can take responsibility for people treating me like shit again and again and again. I can take responsibility for being messy, mismanaging trust, and for trying to have some control over my own life. I can take responsibility for not being a good communicator. I can take responsibility for that. At end of the day, there's so much responsibility. But I'm rather tired. I can take responsibility for my family using the healthcare system to run me over again and again like road kill.
I can take responsibility for many things. But I'm rather tired. I'm tired of people lying and being wretched excuses for human beings. I'm running out of the ability to not call them out on it. My counselor is the only reason I'm still alive and in one piece. The absolute, only reason. Otherwise, my family would have rearranged my biology and my psychology yet again. Someday maybe people will understand. Or maybe I'll live my life communicating by smoke signal. I don't know. I have to maintain some semblance of safety and sanity. My counselor is the firewall. So long as she is standing, I am safe. Some people find that enraging. But she's still standing.
As of yet, my family has only dragged in 3 upstate hospitals, 2 in MA, and countless doctors and therapists to try to untangle the mess of drugs (medications) and issues that they have found with me. Who knows. I'm only in my 40s. By the time I'm dead, maybe we can drag the absolute entire eastern seaboard into this dysfunctional thing we call my life. Or maybe someday some people will finally fuck off. Here's hoping.
F.U.B.A.R.
Monday, September 22, 2025
Ive been holding onto fantasies too long. I have to start cutting cords. Question is, if I end up in a hospital again, or have an accident or anything at all happens, what next? What will they think of next? What narrative, center, drug, rationalization, excuse, or lie is next? Where is the bullshit train heading? And how do I get off?
The truth behind the medical bullshit is definitely becoming clearer. No one has given up. They're changing tactics. Watching. Waiting. Too convinced of thier own moral and mental superiority, desperate to restore prichards and bury thier mistakes, bring back the glory days when they drugged freely and buried the truth of the past. Everything they covered up with all the pills and all the shrinks and the defenses and rationalizations. their dogged determination makes my life all the more isolating and risky.
Sunday, September 21, 2025
The Narrow Path
Problems
How do you know when someone has a problem? What does it take to cross the line?
Is it enough that they use a psychiatrist to control them son and repeatedly stab him in the back? Does it have to move on to using multiple hospitals to do the same? What about repeatedly threatening, begging, manipulating, lying, and sabotaging their health while playing dumb? How much forced medicationings does it take? How many threats? How many lies? how many betrayals?
What is the definition of insanity? The saying goes, doing the same thing over and over again expecting different results. Some people literally never learn. They prefer to destroy others and bring everything crashing down around them rather then be wrong.
We still haven't finished going through the paperwork from the hospital, but I'm willing to bet that somewhere there is a record of my father speaking to the doctor and repeating the same bullshit story that he's been telling everyone for years. Ever since Prichards quit. He's absolutely determined to destroy everything in my world unless I repent and restore Prichards to his place of honor and quit this counseling. It doesn't matter how many people he uses as pawns, what he destroys, what extremes he has to go to.
And then they say I don't have problems. And they play dumb and lie to me over and over again. Throw me trinkets and false compliments and bullshit me to death. I want to see what's in those hospital records. I'm tired of people playing games with my mind.
Some people just don't know when to quit. They don't take fuck off for an answer. Too addicted to control and self glorifications. I swear that man has so many pawns dancing to his tune and they know they are being used and yet they play along. Fucking twisted.
The Egotist
Life feels like an amusement park ride that I just can't get off. Now I'm beginning to see that other people are getting tired too. We're all just spinning round and round and crashing into each other. I think a while back I talked about slowing it down. I feel like I just keep pumping the brakes but its difficult to make it stop especially when all the noise just doesnt dampen. The more time passes by the more the reality creeps in and the horrified I am by the past.
People are messy. They require a lot of maintenance and management and instead of getting quieter everything just gets louder and faster. I keeping closing doors and they keep breaking open and then its musical medications and backstabbing and manipulation and ceaseless and never ending games and its like living inside a pinball machine. The reality comes back again and again and im absolutely horrified by the past. The more I try to step away from people the more angry and spiteful they become, dragging me back again and again with thier narratives and demands.
Getting off clozaril happened 3 years ago, with a brief interruption. And some people will stop at nothing to obliterate my existence and make my life the very definition of "A Dolls house". It's sick. So pedantic and self obsessed, with little to no concern for my well being. And yet we play this game, and drag in half the county and virtually every state agency as if just to make a point. It's insanity on wheels. Never-ending charades... and yet... as much power as some people think they have, they do not control the law.
Someday I will die. Right now im still breathing. It doesnt matter the lies and the labels and the parade of bullshit. They cant erase me. They keep trying, throwing trinkets and using manipulations and games. I'm still standing. These power plays are not fooling anyone or impressing anybody. They just make this name a joke and make more obvious the sickness behind it all.
Some people will just never quit. Too obsessed with how important they feel controlling the world and puffing themselves up like peacocks, strutting around so everyone can see how great they are in their minds, and how pathetic in actual reality.
Maybe someday they will quit. Maybe not. I'm not holding my breath on that. Ive got to try to pick up these pieces and move on.
Cult Fiction
Sometimes being part of a family is less like a company and more like a cult. There's a tremendous volume of stories that go beyond all reason to be more like ancient legends or folklore... members become caricatures or mythical beings of good or evil, and facts are pulverized and reshaped into stories of greatness or tragedy. There's a certain desperation when people don't stick to the script. A panic. A rage, even. Life becomes a predictable nonsense of walking around repeating the same phrases and pretending that life is rigidly predictable and that nothing happens at random and no one makes mistakes. People are either perfect or evil. Angels or demons.
Sometimes families even have enforcers. If someone falls out of line there's always a sibling or a child or an aunt or uncle to form this stream of incessant checking like a stream of water wearing down a rock.
I'm rather certain that by the time I'm dead, people will understand the dangers of poor boundaries in healthcare better. There's only so much you can manipulate a mind and medicate it and threaten it and constantly and relentlessly attempt to pulverize fact and build fiction before it either breaks or turns the script.
Even CCBH knew. That crazy doctor ran around screaming about the family that operates like a medical cult and regurgitating various insanities and literally drove me and that hospital into the ground with the stupidity of trying to re-force medicate and what good did it do ANYONE? HELLO??!?!? Some people never learn. I'm a slow learner. But I'm catching up.
Anyways, more work today. I lost some money trying to start the tax business that the cult was insisting on and dealing with the fallout of the nonsense from the last hospital visit. I've been hardening some defenses and monitoring spending while trying to take care of the tax matter.
I really hope it doesn't get to the point that I have to start being blunt with people. I don't want to start saying things like "go F*** yourself" or "I'll see you in hell". Life shouldn't feel like a war, and regurgitating bullshit is getting tiresome.
I'm trying to focus on that peace. The ticking of clocks rather then the incessant prattling of people who cannot and will not mind their own business... the constant pushing and prodding, like a doctor probing a wound for a bullet.
I've had to close a few doors. Hopefully the hospital is cluing in and closing a few doors as well. Poor boundaries in healthcare is truly the devil's workshop. It breaks people, families, and organizations down. They'll keep saying I'm paranoid and crazy, but from time to time the story just won't add up.
Past Reflections
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The full strength of the storm had set itself against me and I had prevailed. In all honesty, it was not even a proper mountain, merely a gl...
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The voice on the phone was familiar to him and still talking, but he had stopped listening several minutes ago. She obviously didn't...
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For Ashes, life was always about the spark. The hard part was avoiding a wild fire. With the spark, everything was meaningless. But after a ...
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I can honestly say I never understood the world. I was naïve. The people around me told me I had to change, to be like them. I wanted to, bu...
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I have lost my way before, it's true. I have retreated into the distance, pulling back from the world in pursuit of shelter from the sto...