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Thursday, August 7, 2025
Some of my doctors will practically commit hara kiri if I suggest I don't have bipolar. Which is exactly what Prichards did. At least he had the sense to understand that trust had been broken. Some people don't like autism or believe in DID. Unfortunately, there's nothing I can do about that. What I can do is educate my doctors. For example, one ER psychiatrist said that Bipolar is "one of THE MOST OVERDIAGNOSED things in the book." Ive been in these hospitals and centers and I'm convinced the man is absolutely correct. There's plenty of bipolar labelees. It's just that the whole point of these labels is to help people. If the patterns fit, the meds help, the education helps, then great. If it doesn't, then its time to move on. All of the meds I'm on help other disorders. Mood Stabilizers NEVER worked. Not from day one. It's time to move on.
Life is short.
I feel that what I grew up doing is not sustainable. I've been pushing the medication and the science too hard and now it's come full circle. I need to be deliberate, not repeat failed strategies. The medication helps, but I need to go slow, reduce expenses, not take on more and more. It's clear to me that pushing the limits of medicine has reached its limits. Reducing consumption and holding steady is going to have to be my goal. I don't want to be bitter or demanding. I want to appreciate the small things.
Wednesday, August 6, 2025
Tuesday, August 5, 2025
Prior authorizations
The insurance continues to drag its feet on vyvanse. I'm a little annoyed. It's a really good medication. It gives a very smooth effect as I recall. I hope they change thier minds. Otherwise, its concerta for me. Nevermind its generic and shouldn't cost that much. I was excited it went generic for exactly this reason.
Advantages of counseling
The advantages of counseling for someone with autism are numerous. They include some of the same advantages that anyone can gain, but particularly additional insight into social behavior, social problem-solving, personal insight, and improved communication. Some people don't believe in autism or counseling or whatever they choose not to believe in. Some people don't believe in evolution, some people don't believe in God, somewhere there may still be people who believe the earth is flat. Some people believe in ghosts; other people do not. I believe in patience and personal space. It's how I tolerate others. I give them space when we don't communicate well, and I have patience for when they are ready. I have to have patience for myself as well. That's something I've learned: I'm not always able to meet people where they are. Sometimes I need space.
Focus
This time spent alone has helped in some ways. I gained back a little weight, the digestive symptoms calmed down, and I feel more clarity from this time to think. It's making more sense. Screening my communications has been helpful as well. I feel less confusion with fewer voices. It's not that I don't like people, I just need the clarity of the quiet.
Continuing...
I'm still looking for part time work. I'm trying to minimize and carefully filter my social contact so my life can be less confusing and scam free. I think my health care providers would appreciate fewer people messing with me. It gives them less work to do. Like Artstick said, can't have too many cooks in the kitchen. The less chaos, the better.
Monday, August 4, 2025
Wrapping up my life of Crime
Hopefully, I'll be working again very soon. I'm tired of healthcare. Only now I'm due to see the dentist! *sigh*
Patience
Life gets confusing sometimes, and I see the effect of a lot of bad communication. So, I'm trying to exercise patience and humility as I try to wrap up clearing up this healthcare situation and seek work. I'm trying to be very deliberate and selective in my communications so that I'm not misinterpreted. I knew communication was important, but it's absolutely amazing what miscommunication can do. Choosing words carefully is something I'm going to focus on. I'm going to present my best self, and hopefully that will lead to good things. Otherwise, I'm going to need a lot of metaphors.
Laughter
I'm trying to work on some more funny stories for people, because I do believe that laughter is great medicine. Life gets too serious sometimes, we need something to laugh about to break it all up and be able to breathe. I know that's true for me. I need to laugh a little.
Sunday, August 3, 2025
Some of the things that people hate about me are some of the things i like the most. I like to avoid large social gatherings with the formalities, fakeness, the schedules and the shows. I like the substance beneath it all. They said when in Rome do as the Romans do. But that phrase leaves out the obvious: Rome fell. Societies come and go. Tying your horse to a group of people is only worthwhile in that it serves a purpose.
The Answer
I honestly would have liked clozaril to have been "the answer" for me. It might have saved me some heartache and grief. But experience and feedback tell me otherwise. Sometimes medicine isn't that simple. Sometimes a medication that appears to be a fit at one time does not in fact resolve problems at another point in time. I liked the idea of having a formula for my life. It was a beautiful idea.
Saturday, August 2, 2025
Serenity
I dunno, I get the feeling that I'm a little bit short on serenity. I don't know if I strike people as being laid back, but I'm not. I get frustrated. I've felt so driven. I get the urge to rub pennies together as if they might start a chain reaction and multiply.
Very strange, the world. Very strange. My life is seriously not as exciting as most people seem to think. Like because my parents had a fancy house I have it made. I do not. Not even close. I have to ask questions too. Questions like, will I be able to pay for food? Will I have a home? Will i have a job? I have to ask questions like that. And thats not actually a new thing. God forbid social security does decide to cut disability, then I'm well and truly fucked. It's really funny unless it's your life. Unless you're the one wondering if you'll have a home. Unless you're the one wondering if you'll be able to eat. Then it stops being funny. It doesn't seem like the people who know me consider for 50 seconds how close I am to oblivion. I'm just one bad day away from a really bad situation. I don't have a safety net. No golden parachute here. No parachute period. Can't even get ads on my writing site. They scam me for money. The guy thats broke. Makes a whole Lotta damn sense. We've got millionaires in this city but no they take my money when I can barely pay for food. Makes a whole lotta damn sense.
But no maybe I just worry too much. I'm sure thats it. I'm sure I have no problems. Carefree. Yep. No problems here. Million dollars under the floor. 3 secret mansions. The IRS will never catch me. Ha. Ha. Ha. HA.
If March Taught Me Anything...
I was wandering through the untethered confusion of the aftermath of 2022 as best I could (which, some would say, was not well at all), when I landed in that ER after the Spravato treatment. What a jolt that was. I have not felt safe since then, but I'm able to sleep now. This is part of how the contractor convinced me to buy the security system for the home that I live in. I had never felt the need for security before. It's always been one of the safest neighborhoods. Now I arm the security sometimes 24/7. Another bill to pay. My sense of certainty has diminished drastically. I doubt what I know. The doubt what I've done. It hasn't even been that eventful, I didn't think. I didn't think I was important enough to be noticed. I felt like it took a lot of nerve to go back to that ER. It did feel a bit surreal and mechanical. I learned a bit about power dynamics that month. I learned what happens when you attract the wrong attention. Maybe it was silly of me to think it would be any different. But I thought by being quiet and following the letter of the law I would be ok. I was wrong. I was very wrong. I'm looking for the faith inside myself. I'm not sure what the world wants. I'm trying to find out. I'm trying to communicate better. I'm trying to be realistic. I cannot over rely on medication. I cannot fight the system because I will lose in a heartbeat. I cannot possibly be that intelligent if I can lose at life so badly as to be in this situation at my age.
Corners of the Mind
Closer the walls and harder the task
Alone again, I scream at the glass
Alone again, I scream at the glass
Closing in, the mocking faces
Here I am, in the same old places...
Running faster than I can think
Making choices between every blink
Into the fear and righteous anger
I'm from one into another danger
Where do I go when the last castle falls?
Where do I go when the goaler calls?
Where did I come from that I came to here?
What do I do when I'm lost in my fear?
I'm reminded of the old saying, the definition of insanity is doing the same thing over and over expecting different results.
For me, that means going back to the same people, the same career paths, the same medication, expecting different results. It doesn't matter which drugs I try; I've tried so many. It doesn't matter which way I word the same things to the same people; they're still going to act the same regardless, it doesn't matter how I repackage my accounting and technology services, that ship has sailed.
I can't keep jamming a square peg in a round hole. My auditory communication is not great. It never has been. And it's gotten worse with the VNS. Some people don't like to communicate in writing. That became an issue in 2020 especially. It still is.
That's why my counseling is so important. It really helps with communication and executive skills. The Psychiatrists have made up their minds about me. I'm never going to change that. The drugs won't change that. My poor auditory communication won't change that.
I do have to be realistic. I do have very real limitations. Thats why I need to be careful (in Psychiatrist speak "paranoid"). Because I could trust the wrong people, I could make bad decisions, I could go the wrong way. I've already gone so many steps down that road. I'm broke. I've been medicated out the wazoo. I've seen doctors all over the east coast. I have to slow this down. I need to be careful. Deliberate.
Otherwise, it's one long train of disaster after disaster. I can't afford more mistakes. Theres that old saying about how in life we occasionally fall down and get back up, only that as we get older, we get up faster. Compare that to MIPs poem about falling in a hole on the same street, and eventually choosing to go down a different street. Ive gone down a few different streets... different jobs, homes, hospitals, doctors, but I keep falling into holes. I gotta make sure im not falling into the same holes again. Thats why I have to slow it down and think. I have to be a little paranoid now, so I don't fall into the wrong hole. Because I may not get back out the next time. I'm getting too old for this. I'm running out of time.
Tiktok Scam
Well, I guess I never learn. But these criminals think of everything. It starts with harassment. A bogus offer. Before you know it you're being threatened. At the end, you're out the money, stressed and humiliated. This is how social media scams work.
This one came from a tiktok account claiming to be associated with Stoll, Keenon, Ogden, PLLC. from Lexington, KY. Claiming to be an artist. The Scam was for $400.
Here's how it worked:
She contacted me out of the blue claiming to be interested in a photo of mine. She was an artist, she said, and wanted to make a painting of the photo. All she needed was my permission to use the photo.
Yeah, right. A long and very intense back and forth later, she had repeated threatened to call the police on me for cashing the check and refusing to follow her increasingly bizarre and aggressive instructions to send money to other people. At the end i sent the full $400 and told her to leave me alone. She did not. I had to call 911 and talk to mauldin police, who instructed me to block all communications from her numbers and accounts. She still persisted, and then the check bounced, leaving me out $400 and a long of stress and harassment. I have followed with the FBI and am preparing to file a report with local police.
BEWARE OF ANYONE ON SOCIAL MEDIA MAKING OFFERS. DO NOT ACCEPT CHECKS FROM PEOPLE YOU DON'T KNOW, EVEN IF IT LOOKS LIKE A LEGIT CHECK. I was stupid to fall for it. But I was short on money and now I'm even shorter and I have to file a police report. Be careful of Stoll, Keenon, Ogden, PLLC. They are passing bad checks and threatening people with arrest.
Sleepwalking
I'm trying to slow this down. This is like sleepwalking from one decision to the next. The sleep itself has improved, even though I haven't gotten my sleep equipment. The isolation has helped my blood pressure and anxiety. I had too many people in my mind, trying to mess with things they didn't understand or had no business fooling with in the first place. The internist really seemed to hit the nail on the head with the shot and recommendations. I swear, everything that MIP manages to fuck up, the outpatient people help me clean up. Completely different meds and recommendations.
But my mental state has not been perfect. The meds have sedated away the restlessness. My focus and mental presence remain sketchy. I'm waiting on the insurance to approve the Vyvanse, but I doubt it will be a game changer. I need to make more measured decisions, more careful decisions. This has been a bit of a three-ring circus.
I've taken down the business website until I can make sure of my ability to deliver upon the promises. I can't afford any more screwups. I feel like the doctors are so eager to sweep under the rug the screwups with Prichards that they will find any distraction or diversion to change the conversation. I did idolize the man, but we went through so many drugs and combinations and dosages outside of guidelines that I'm not sure what that did to my mind.
I know the psychiatrists and doctors want to believe in their colleague the magic maker and all his skills, but it's dangerous to do so. It's dangerous to pretend as if these drugs don't have risks. I don't think it's safe to drug lightly. I don't think it's safe to use so many meds in combinations off label and outside of guidelines. I don't think it's safe to recommend THC and Spravato and then blame the patient for the results. We got here together. I have to mentally untangle it. I have to call attention to these dangers because I want people to be safe.
I felt like going back to memorial and their psychiatrists was something I had to do. I felt that I could not predict how my mind would handle having no one to manage the medication. I had been on medication since the age of 10. It did not seem like a good idea to stop taking medication suddenly, and the internist was not prepared to take on the task, or so he said at the time.
But it leads me to question so many events and circumstances of my life. How exactly did I become a walking science experiment? How did I get to this point?
Friday, August 1, 2025
The Space Between
Canyons and valleys
I can't reach you out there
With all the space between
Maybe life is suffering
But I thought there was more.
I've seen it here and there
Those other things I mentioned
It never lasts too long
And then I'm back again.
I have to go away
In order to come back
I have to find a way
To find all that I lack.
Come find me in-between
I'll save a place for you
We'll write our own brave story
And finally make it true.
Age
People tell me that I look younger than I actually am sometimes. Growing up, I was an idealist. I did have confidence, outwardly at least. I come to realize in this dispute of mine over diagnoses that, regardless of the details, medication can only do so much. It's been quite a distraction, trying to understand what exactly the different medications are doing and what they aren't doing.
When I got diagnosed with the DID thing, I thought it was a chance to reinvent myself, to improve my life, but it hasn't quite turned out that way. Instead, I find myself brushing up against barriers that I was either unaware of or was trying to ignore. Ironically, I passed the CPA exam but it expired a good long while ago. I'm feeling my age in moving slower, responding slower, not having the same endurance. I have to be realistic. I don't know who I thought I was. But it's become clear I've been expecting too much from medication.
I feel like I've overestimated myself and seen life unrealistically. It's hard to unhear and unsee, it's hard to unknow. I think I need to reach into myself and find that inner solace to quiet my thoughts and simplify my life. My mind is too curious. It wants to tap all the wells. I need to be careful. My cat may have nine lives, but I think I have fewer. I came back from two comas, maybe I shouldn't push my luck.
I like to see the younger people taking a turn. Maybe they can do more than I could. I'm still looking for some part time work. I think Accountec is going to have to focus on the teaching, which is what I originally wanted to do with my accounting. I'm not sure what that looks like at this point. Social systems simply aren't easy to navigate. They are everywhere. I find writing much easier then actually talking. Strange how that works. Of course, it doesn't help that this implant makes talking a bit more difficult than I anticipated. Just another example of me overestimating medicine.
Every time I think I know what to do, someone or something proves me wrong. I should have been a simpler person.
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